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原文摘要

Involving patients' lived experience (LE) early in neurorehabilitation technology design can improve the relevance and effectiveness of solutions, yet LE experts are often involved only when finished prototypes are tested. We present and evaluate a participatory design (PD) workshop for early LE involvement, examine how LE contributions influence design processes and outcomes, and provide recommendations for similar approaches. We conducted a PD workshop at the 6th International Conference on NeuroRehabilitation. Five people who have had a stroke (LE experts) and 18 workshop attendees (including the LE experts' caregivers) were organized into five groups. Following the Discover, Define, and Develop phases of the Double Diamond model, each group used Journey Maps and Data Collection Notebooks to co-create a solution for an objective specified by an LE expert. Journey Maps were thematically analyzed, and group audio transcripts underwent structured extraction using a large language model. LE input shifted discussions from discipline-based assumptions toward priorities grounded in lived experience, including fear, confidence, sensory discomfort, fatigue, aesthetics, and independence. Narrow objectives, such as opening a blister pack, produced task-specific solutions, whereas broader objectives generated device concepts, including sensory feedback for cycling and a stimulation-equipped cooking splint. Satisfaction was high among attendees and LE experts. All workshop tools and protocols are shared to support adoption. The workshop offers a practical foundation for involving LE experts early in neurorehabilitation technology development. Future iterations should better capture psychological and social dimensions, allow more reflection, and include the full range of relevant stakeholders through sustained transdisciplinary engagement between researchers and the LE community.