← 研踪 PaperTrailarXiv:2611.15720 · v1
Terms of Care: Designing for Participation in Data Governance by Disability Communities
首次提交 2026-11-12 00:58
版本更新 2026-11-12 00:58
雷达观测 2026-11-13 14:16
摘要
Improving disability representation in AI-generated media requires community-specific datasets, yet openly sharing such data can expose communities to misuse, decontextualization, and exploitation. We examine how disability communities can participate in dataset governance through context-sensitive licensing. Working with three disability advocacy organizations, we conducted semi-structured interviews, an educational webinar and modular license activity to promote community participation in data stewardship. Our findings show that governance in these high-context communities relies on organizational memory (especially situated harms); both formal authority and informal relational practices; communication; and resulting trust. The modular license activity made organizational data choices more accessible and values-led, allowing communities to adapt Creative Commons clauses to express permitted uses, sector-specific restrictions, safeguarding requirements, and commitments to respectful representation. Yet, concerns remain about monitoring and enforcing appropriate data use. We contribute (1) an empirical account of governance tensions, (2) a practical modular approach, and (3) design implications for AI data platforms that support relational, context-sensitive governance beyond standardized, one-size-fits-all frameworks.
作者备注：26 pages, 3 figures, 3 tables, under review
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v1 · 2026-11-12 00:58 · 最新观测版本
Terms of Care: Designing for Participation in Data Governance by Disability Communities
Improving disability representation in AI-generated media requires community-specific datasets, yet openly sharing such data can expose communities to misuse, decontextualization, and exploitation. We examine how disability communities can participate in dataset governance through context-sensitive licensing. Working with three disability advocacy organizations, we conducted semi-structured interviews, an educational webinar and modular license activity to promote community participation in data stewardship. Our findings show that governance in these high-context communities relies on organizational memory (especially situated harms); both formal authority and informal relational practices; communication; and resulting trust. The modular license activity made organizational data choices more accessible and values-led, allowing communities to adapt Creative Commons clauses to express permitted uses, sector-specific restrictions, safeguarding requirements, and commitments to respectful representation. Yet, concerns remain about monitoring and enforcing appropriate data use. We contribute (1) an empirical account of governance tensions, (2) a practical modular approach, and (3) design implications for AI data platforms that support relational, context-sensitive governance beyond standardized, one-size-fits-all frameworks.
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